HILLSBORO, N.D. \u2014 The Kritzberger family has farmed in the Red River Valley for more than a century. They once had livestock. Now they grow sugar beets, soybeans, and grains.<\/p>\n
Like many farmers, they labor to balance the books. \u201cWe\u2019re in an incredible amount of debt,\u201d Ang Kritzberger said as she walked the farm on a recent fall morning.<\/p>\n
For the past 10 years, the Kritzbergers have had another worry. Their daughter Nina has Type 1 diabetes. That\u2019s landed the family in a national debate about how to protect patients from high insulin costs.<\/p>\n
Nina was diagnosed when she was 7.<\/p>\n
\u201cI slept by her bedside for the first 60 days,\u201d Ang Kritzberger said. \u201cAnd I had to stick her finger every two hours, 24 hours a day, to make sure that she was OK.\u201d<\/p>\n
The Kritzbergers also pay a lot out-of-pocket every year for medical care, despite having insurance \u2014 at least $8,000 for drugs, supplies, and medical appointments.<\/p>\n
That\u2019s not uncommon. Soaring insulin prices for years forced people with diabetes to pay hundreds, even thousands, of dollars. Many rationed insulin, with sometimes deadly consequences.<\/p>\n
But today, there\u2019s a growing movement across the country to cap what people with diabetes pay for insulin. That\u2019s brought together Democrats and Republicans, tapping an emerging consensus<\/a> that the government should protect people from high drug prices.<\/p>\n \u201cTypically, Republicans are more on the free-market side of things, Democrats are more supportive of intervening,\u201d said North Dakota state Sen. Sean Cleary, a Republican. \u201cBut in this case, I think there was broad-enough agreement that this market just wasn\u2019t functioning for folks.\u201d<\/p>\n Cleary co-sponsored legislation last year<\/a> to cap patients\u2019 insulin bills at $25 a month. North Dakota is one of 29 states<\/a> that have enacted such measures.<\/p>\n The cap limits what patients have to pay out-of-pocket every month for insulin \u2014 even if they have a high deductible that might force them to pay thousands of dollars before coverage kicks in for other healthcare, such as physician visits, hospitalizations, or other prescriptions.<\/p>\n North Dakota state Sen. Sean Cleary, a Republican, co-sponsored legislation last year to cap patients\u2019 insulin bills at $25 a month. (Hannah Norman\/KFF Health News)<\/p>\n Patient advocates, including the American Diabetes Association<\/a>, began pushing for out-of-pocket caps and other protections<\/a> amid spiking insulin prices and stories of patients who had died because they couldn\u2019t afford their medicine.<\/p>\n About a fifth<\/a> of the estimated 40 million Americans with diabetes depend on insulin. The drug has been in use for a century. But steep price hikes boosted patients\u2019 out-of-pocket costs, which hit an average $470 a year in 2018 for people with private health insurance, according to federal data<\/a>.<\/p>\n Prices have since moderated as drug companies faced a public backlash. Average yearly out-of-pocket costs for people with private insurance declined to $220 in 2025<\/a>.<\/p>\n But for many families like the Kritzbergers, the prospect of a government cap offered protection from future price hikes and some relief from the anxiety of a serious disease.<\/p>\n Nina Kritzberger, now 17, said she already has a lot to worry about.<\/p>\n \u201cI have to make sure I have insulin, a spare pump, a spare Dexcom,\u201d she said, ticking off the equipment that patients with diabetes rely on. \u201cOh, what if my pump doesn\u2019t work, or my Dexcom? Then I have to bring a testing kit. What if I go low? I need Gatorade, glucose.\u201d<\/p>\n A missed dose of insulin could land her in the hospital. \u201cMy body would start attacking itself and start shutting down,\u201d she said. \u201cAnd then I would die.\u201d<\/p>\n \t\t\t\t\t<\/p>\n \t\t\t\t\t\t\tThe Kritzbergers pay a lot out-of-pocket every year for medical care, despite having insurance \u2014 at least $8,000 for drugs, supplies, and medical appointments.\t\t\t\t\t\t (Hannah Norman\/KFF Health News)<\/p>\n \t\t\t\t\t<\/p>\n \t\t\t\t\t\t\tThe Kritzbergers keep insulin injection pens in their refrigerator. A missed dose of insulin could land Nina Kritzberger in the hospital. \u201cMy body would start attacking itself and start shutting down,\u201d she says. \u201cAnd then I would die.\u201d\t\t\t\t\t\t (Hannah Norman\/KFF Health News)<\/p><\/div>\n<\/div>\n The price cap strategy initially caught on with Democrats. In 2019, Colorado became the first state<\/a> to enact what was called an insulin copay cap. State-regulated health plans there cannot charge patients more than $100 for a 30-day supply of the drug.<\/p>\n In 2022, President Joe Biden signed legislation<\/a> that capped insulin prices for Medicare enrollees at $35 a month. Biden and congressional Democrats wanted to extend the cap to people with private health insurance, including Americans with employer-provided coverage. But Republican opposition sank that proposal.<\/p>\n In North Dakota, state Sen. Tim Mathern led the effort to enact an insulin copay cap for health plans regulated by the state. For a long time, Mathern struggled to find supporters. He\u2019s one of only five Democrats in the Senate. There are 42 Republicans.<\/p>\n \u201cOne is very lonely being a Democrat,\u201d Mathern said, \u201cespecially if you espouse the more progressive end of public policy.\u201d<\/p>\n Health insurers and the state chamber of commerce said price relief for people with diabetes would mean higher insurance premiums for everyone else. \u201cWe do not make health insurance more affordable by passing coverage mandates,\u201d Blue Cross Blue Shield of North Dakota lobbyist Megan Hruby told lawmakers.<\/p>\n The industry tapped into many lawmakers\u2019 skepticism about regulation, said Janelle Moos, a state lobbyist for AARP. The nonprofit advocacy group for older Americans supported the insulin bill.<\/p>\n \u201cIt wasn\u2019t the role of government,\u201d Moos said she was told by many GOP lawmakers. \u201cIn a state like ours, we hear that all the time.\u201d<\/p>\n Janelle Moos is a state lobbyist for AARP, which supported North Dakota\u2019s insulin bill. (Hannah Norman\/KFF Health News)<\/p>\n Ang and Nina Kritzberger joined other families driving hours across the state to testify at the Capitol in Bismarck.<\/p>\n It was intimidating at first, Ang Kritzberger said. \u201cIt was me and six other lobbyists that were going to be giving their testimony against me,\u201d she recalled.<\/p>\n But supporters of the insulin bill showed that a similar measure that limited out-of-pocket costs for state employees with diabetes had little impact on insurance premiums.<\/p>\n It also became clear that many lawmakers, including Republicans, had grown very frustrated with drugmakers, health insurers, and others in the healthcare industry.<\/p>\n \u201cWhy are folks paying hundreds of dollars a month for a drug that\u2019s been commercially available for decades?\u201d asked Cleary, the state senator. \u201cI just kept coming back to the fact that this market seems so broken and these families are having to make impossible decisions about rationing medication or skipping treatment.\u201d<\/p>\n State Rep. Carrie McLeod is also a Republican, and a diabetes educator. She said the healthcare system had become too focused on the bottom line. \u201cThe insurance companies started out to really help people with catastrophic needs, but things have gotten out of control,\u201d McLeod said.<\/p>\n When the insulin bill came up for a vote last year, it passed with overwhelming bipartisan support.<\/p>\n North Dakota state Rep. Carrie McLeod is a Republican and a diabetes educator. She says the healthcare system has become too focused on the bottom line. (Hannah Norman\/KFF Health News)<\/p>\n The cap won\u2019t suddenly make healthcare affordable. For one thing, states can regulate only some health plans. Health insurance provided by larger employers is typically regulated by the federal government.<\/p>\n But polls suggest government regulation of healthcare prices is drawing Americans together.<\/p>\n About 7 in 10 U.S. adults \u2014 including 68% of Republicans and 77% of Democrats \u2014 said in a KFF survey<\/a> earlier this year that there isn\u2019t enough government regulation to limit the price of prescription drugs.<\/p>\n Congress is now considering a national cap<\/a> on insulin prices. Among the bipartisan list of co-sponsors is Sen. Kevin Cramer, a North Dakota Republican.<\/p>\n Back on her farm, Ang Kritzberger says the insulin debate showed something else.<\/p>\n \u201cWe\u2019re very connected in North Dakota,\u201d she said, recalling how her neighbors had recently helped a farmer with brain cancer harvest his sugar beets. \u201cIt\u2019s all about being connected and finding that common ground.\u201d<\/p>\n<\/div>\n KFF Health News<\/a> is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF\u2014an independent source of health policy research, polling, and journalism. Learn more about KFF<\/a>.<\/em><\/p>\n This article<\/a> first appeared on KFF Health News<\/a> and is republished here under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License<\/a>.<\/p>","protected":false},"excerpt":{"rendered":" HILLSBORO, N.D. \u2014 The Kritzberger family has farmed in the Red River Valley for more than a century. They once had livestock. Now they grow sugar beets, soybeans, and grains. 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