{"id":3403,"date":"2025-01-29T23:38:38","date_gmt":"2025-01-29T23:38:38","guid":{"rendered":"https:\/\/medical-article.com\/?p=3403"},"modified":"2025-01-29T23:38:38","modified_gmt":"2025-01-29T23:38:38","slug":"quantifying-the-altruism-value-for-a-rare-pediatric-disease-duchenne-muscular-dystrophy","status":"publish","type":"post","link":"https:\/\/medical-article.com\/?p=3403","title":{"rendered":"Quantifying the Altruism Value for a Rare Pediatric Disease: Duchenne Muscular Dystrophy"},"content":{"rendered":"<p>That is the title of a <a href=\"https:\/\/www.ajmc.com\/view\/quantifying-the-altruism-value-for-a-rare-pediatric-disease-duchenne-muscular-dystrophy\">paper recently published in <\/a><em><a href=\"https:\/\/www.ajmc.com\/view\/quantifying-the-altruism-value-for-a-rare-pediatric-disease-duchenne-muscular-dystrophy\">AJMC<\/a><\/em><a href=\"https:\/\/www.ajmc.com\/view\/quantifying-the-altruism-value-for-a-rare-pediatric-disease-duchenne-muscular-dystrophy\"> with co-authors Suhail Thahir, Alexa Klimchak, Ivana Audhya, Lauren Sedita, and John A. Romley<\/a>.   The abstract is below.<\/p>\n<p><strong><em>Objectives:<\/em><\/strong><em>\u00a0To quantify the magnitude of altruism value as applied to a hypothetical new treatment for a rare, severe pediatric disease: Duchenne muscular dystrophy (DMD).<\/em><\/p>\n<p><strong><em>Study Design:<\/em><\/strong><em>\u00a0Prospective survey of individuals not planning to have children in the future.<\/em><\/p>\n<p><strong><em>Methods:<\/em><\/strong><em>\u00a0A survey was administered to US adults (aged \u2265\u200921 years) not intending to have a child in the future to elicit willingness to pay (WTP) for government insurance coverage for a new hypothetical DMD treatment that improves mortality and morbidity relative to the current standard of care. A multiple random staircase design was used to identify an indifference point between status quo government insurance coverage and coverage with additional cost in taxes that would cover the treatment if unrelated individuals had a child with DMD. Altruism value was calculated as respondents\u2019 mean WTP.<\/em><\/p>\n<p><strong><em>Results:<\/em><\/strong><em>\u00a0Among 215 respondents, 54.9% (n\u2009=\u2009118) were aged 25 to 44 years and 80.0% (n\u2009=\u2009172) were women. Mean WTP for insurance coverage of the hypothetical DMD treatment for others was $80.01 (95% CI, $41.64-$118.37) annually, or $6.67 monthly, after adjustment to account for disease probability overestimation. The adjusted altruism value was higher than the ex ante per-person value using traditional cost-effectiveness approaches ($45.30\/year). Without adjusting, individuals were willing to pay $799.11 annually ($66.59 monthly).<\/em><\/p>\n<p><strong><em>Conclusions:\u00a0<\/em><\/strong><em>Despite no possibility of accruing health benefits directly for themselves or their children, individuals had a high WTP for government insurance coverage of\u00a0a\u00a0novel treatment for this rare, severe pediatric disease.<\/em><\/p>\n<p>You can read the full paper <strong><a href=\"https:\/\/www.ajmc.com\/view\/quantifying-the-altruism-value-for-a-rare-pediatric-disease-duchenne-muscular-dystrophy\">here<\/a><\/strong>.<\/p>","protected":false},"excerpt":{"rendered":"<p>That is the title of a paper recently published in AJMC with co-authors Suhail Thahir, Alexa Klimchak, Ivana Audhya, Lauren Sedita, and John A. Romley. The abstract is below. Objectives:\u00a0To quantify the magnitude of altruism value as applied to a hypothetical new treatment for a rare, severe pediatric disease: Duchenne muscular dystrophy (DMD). Study Design:\u00a0Prospective&#8230;<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-3403","post","type-post","status-publish","format-standard","hentry","category-articles"],"_links":{"self":[{"href":"https:\/\/medical-article.com\/index.php?rest_route=\/wp\/v2\/posts\/3403"}],"collection":[{"href":"https:\/\/medical-article.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/medical-article.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/medical-article.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3403"}],"version-history":[{"count":0,"href":"https:\/\/medical-article.com\/index.php?rest_route=\/wp\/v2\/posts\/3403\/revisions"}],"wp:attachment":[{"href":"https:\/\/medical-article.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3403"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/medical-article.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3403"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/medical-article.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3403"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}