Caregiver risk preferences for delaying loss of ambulation in Duchenne muscular dystrophy

That is the title of a paper published today in Current Medical Research and Opinion with co-authors Nadine Zawadzki, Moises Marin, Ivana Audhya, Lauren Sedita, Natasha Kulkarni and Alexa Klimchak. The abstract is below. ObjectivesQuantify caregiver risk preferences to inform the “value of hope” for Duchenne muscular dystrophy (DMD) therapies affecting time to loss of…

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Watch: How Controversies Over Vaccine Changes Affect You

Céline Gounder, KFF Health News’ editor-at-large for public health, appeared on CBS News’ “Face the Nation With Margaret Brennan” on Aug. 31 to discuss leadership changes at the Centers for Disease Control and Prevention and vaccine policy concerns. Gounder noted that the departures of top officials and confusion over how to get vaccines affect the…

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Changes at NIH Give Political Appointees Greater Power To Fund or Block Research

The Trump administration has given notice that political appointees, rather than scientists, will ultimately decide who gets grant money from the world’s largest biomedical research funder — the federal government’s National Institutes of Health. In an Aug. 7 executive order, President Donald Trump announced that political officers would have the power to summarily cancel any…

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Formulary restrictions and health outcomes: A case study in multiple sclerosis

How does formulary restrictions impact health outcomes for patients with multiple sclerosis (MS)? To answer this question, Blaylock, Van Nuys and Joyce (2025) use data 100% Medicare claims data from 2018-2022 covering patients with both prescription drug plans (PDPs) and Medicare Advantage Prescription Drug plans (MA-PDs). Individuals were categorized as above vs. below average formulary…

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Owen Tripp, Included Health, talks AI

“So far AI in health care is being used to drive existing profits on workflows and increase revenue per event that patients in the end have to pay for. That’s not a win for anyone long term!” Included Health’s CEO Owen Tripp dives into the present and future use of AI, LLMs, patient self-triage and…

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