Making Interoperability Privacy Standards Work for the Real World

We are currently experiencing an inflection point for progress in interoperability. Without meaningful reform to reflect the real world, the system risks repeating and even accelerating historical patterns of exclusion — leaving vulnerable patients behind. The post Making Interoperability Privacy Standards Work for the Real World appeared first on MedCity News.

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Cost per responder analysis of iptacopan versus eculizumab and ravulizumab in treatment of paroxysmal nocturnal hemoglobinuria

That is the tile of my recent paper in the Journal of Medical Economics with co-authors Kyi-Sin Than, Sanjana Muthukrishnan, Jincy Paulose, Ver Bilano and Nicholas Kuypers. The abstract is below: ObjectiveParoxysmal nocturnal hemoglobinuria (PNH) is a rare and debilitating hematological disease with significant economic burden. Despite the availability of multiple therapies, there is a…

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